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Sorry to hear that T-T. Keep plugging away, maybe it's time to engage directly with one of the MSA's own medical team (they have doctors on the staff, maybe the message is getting 'garbled' a bit by the internal processes before it gets to them?).
I haven't got the Blue Book in front of me - when I have I'll try and find the bit about medication. I'm sure (as you are) this isn't what it says.
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